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Welcome to Our Fragile X WorldWe are a community of families and researchers dedicated to providing practical information about the world of fragile X. Fragile X syndrome is the most common inherited form of intellectual disability. We use the internet and the telephone to conduct periodic surveys of families, providing important information for policy and practice.
 
You can use the links at the top of this page to learn more about Our Fragile X WorldFamilies enrolled in Our Fragile X World agree that researchers at RTI International may invite them to participate in voluntary, confidential surveys about their experiences with fragile X. If your family has been touched by fragile X, we invite you to join us. 
 
 
 
 

 

 

                                                                                                   What’s New

Thank You to 726 families 
who completed the National Fragile X Survey II! In appreciation, we have donated $7,000 to the National Fragile X Foundation. 
How did the participants answer these survey questions? 
Click on the links to see preliminary results...
Check back for more interesting results!

 

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